Contextual factors affecting autonomy for patients in Iranian hospitals: A qualitative study
Abstract
Background: Consideration of patient autonomy is an essential element in individualized, patient‑centered, ethical care. Internal and external factors associated with patient autonomy are related to culture and it is not clear what they are in Iran. The aim of this study was to explore contextual factors affecting the autonomy of patients in Iranian hospitals.
Materials and Methods: This was a qualitative study using conventional content analysis methods. Thirty‑four participants (23 patients, 9 nurses, and 2 doctors) from three Iranian teaching hospitals, selected using purposive sampling, participated in semi‑structured interviews. Unstructured observation and filed notes were other methods for data collection. The data were subjected to qualitative content analysis and analyzed using the MAXQDA‑10 software.
Results: Five categories and sixteen subcategories were identified. The five main categories related to patient autonomy were: Intrapersonal factors, physical health status, supportive family and friends, communication style, and organizational constraints.
Conclusions: In summary, this study uncovered contextual factors that the care team, managers, and planners in the health field should target in order to improve patient autonomy in Iranian hospitals.
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Munizcastillo MR. Autonomy as a foundation for human development: A conceptual model to study individual autonomy. Maastricht: Maastricht Graduate School of Governance; 2009. p. 1-16.
Lindberg C, Fagerström C, Sivberg B, Willman A. Concept analysis: Patient autonomy in a caring context. J Adv Nurs 2014;70:2208‑21.
Hendrick J. Autonomy and Consent. Low and Ethic in Children’s Nursing. New Delhi, India: Wiley Blackwell: 2010.
Davis AJ, Fowler D, Arosker MA. Ethical Dilemmas and Nursing Practice. 5th ed. United States: Prentice Hall; 2010. p. 77-98.
Tbatabaie M, Kalantarihormozi A. Foundations of medical ethics from the perspective of islamic texts and glories of Iranian medicine. Research in Medicine 2011;35:1‑6.
Lemonidou C, Merkouris A, Leino‑Kilpi H, Välimäki M, Dassen T, Gasull M, et al. A comparison of surgical patients’ and nurses’ perceptions of patients’ autonomy, privacy and informed consent in nursing interventions. Clin Eff Nurs 2003;7:73‑83.
Tschudin V. Ethics in Nursing: The Caring Relationship. 3rd ed. London: Butterworth‑Heinemann; 2003. p. 167-9.
Brooks H, Sullivan WJ. The importance of patient autonomy at birth. Int J Obstet Anesth 2002;11:196‑203.
Dooley D, Swords S. Patient autonomy: A concept analysis. Theoretical Foundations of Advanced Nursing Practice. 2011,
P18. Available from: http://www.dallasdooley.weebly.com. [Last accessed on 2014 Dec 07].
Cabete DS. Autonomy and Empowerment of Hospitalized Older People. Newcastle: University of Northumbria; 2010. p. 36-70.
Rahmani A, Ghahramanian A, Alahbakhshian A. Respecting to patients’ autonomy in viewpoint of nurses and patients in medical‑surgical wards. Iran J Nurs Midwifery Res 2010;15:14‑9.
Masomi N, Jafroudi SH, Ganbari A, Kazemnejad Leili E. Assessment of retired elderly’s people autonomy and its affecting factors in Rasht. Holistic Nursing and Midwifery 2012;21:46‑51.
Cullati S, Courvoisier DS, Charvet‑Bérard AI, Perneger TV. Desire for autonomy in health care decisions: A general population survey. Patient Educ Couns 2011;83:134‑8.
Proot IM, Crebolder HF, Abu‑Saad HH, Macor TH, Ter Meulen RH. Stroke patients’ needs and experiences regarding autonomy at discharge from nursing home. Patient Educ Couns 2000;41:275‑83.
Carlin KA. Autonomy and Health Care Decision making in Chronic Illness. Canada: University of Toronto; 2003. p. 7-41.
Cabete DS. Autonomy and Empowerment of Hospitalized Older People: A Portuguese Case Study. Northumbria: University of Northumbria; 2010. p. 60-70.
Chirkov V, Ryan RM, Kim Y, Kaplan U. Differentiating autonomy from individualism and independence: A self‑determination theory perspective on internalization of cultural orientations and well‑being. J Pers Soc Psychol 2003;84:97‑110.
Beauchamp TL, Childress JF. Principles of Biomedical Ethics. USA: Oxford University Press; 2008. p. 163-89.
Chery B, Jacob SR. Contemporary Nursing: Issues, Trends and Management. 2nd ed. United States: Mosby; 2002. p. 174-5.
Joolaee S, Tschudin V, Nikbakht‑Nasrabadi A, Parsa‑Yekta Z. Factors affecting patients’ rights practice: The lived experiences of Iranian nurses and physicians. Int Nurs Rev 2008;55:55‑61.
Streubert HJ, Carpente DR. Qualitative Research in Nursing: Advancing the Humanistic Imperative. 5th ed. Phiadelphia: Lippincott Williams & Wilkins; 2011. p. 3-15.
Elo S, Kyngas H. The qualitative content analysis process. J Adv Nurs 2008;2:107‑15.
Burns N, Grove SK. The Practice of Nursing Research: Appraisal, Synthesis, and Generation of Evidence. 6th ed. Philadelphia: Saunders; 2009. p. 528.
Say R, Murtagh M, Thomson R. Patients’ preference for involvement in medical decision making: A narrative review. Patient Educ Couns 2006;60:102‑14.
Acharya DR, Bell JS, Simkhada P, van Teijlingen ER, Regmi PR. Women’s autonomy in household decision‑making: A demographic study in Nepal. Reprod Health 2010;7:15.
Flynn KE, Smith MA, Vanness D. A typology of preferences for participation in healthcare decision making. Soc Sci Med 2006;63:1158‑69.
van Kleffens T, van Baarsen B, van Leeuwen E. The medical practice of patient autonomy and cancer treatment refusals: A patients’ and physicians’ perspective. Soc Sci Med 2004;58:2325‑36.
Nomura K, Ohno M, Fujinuma Y, Ishikawa H. Patient autonomy preferences among hypertensive outpatients in a primary care setting in Japan. Intern Med 2007;46:1403‑8.
Proot IM, Abu‑Saad HH, de Esch‑Janssen WP, Crebolder HF, ter Meulen RH. Patient autonomy during rehabilitation: The experiences of stroke patients in nursing homes. Int J Nurs Stud 2000;37:267‑76.
Moser A, Houtepen R, Widdershoven G. Patient autonomy in nurse‑led shared care: A review of theoretical and empirical literature. J Adv Nurs 2007;57:357‑65.
Moser A, van der Bruggen H, Widdershoven G. Competency in shaping one’s life: Autonomy of people with type 2 diabetes mellitus in a nurse‑led, shared‑care setting; a qualitative study. Int J Nurs Stud 2006;43:417‑27.
Verkerk M. The care perspective and autonomy. Med Health Care Philos 2001;4:289‑94.
Ells C, Hunt MR, Chambers‑Evans J. Relational autonomy as an essential component of patient‑centered care. Int J Fem Approaches Bioeth 2011;4:79‑101.
Donchin A. Understanding autonomy relationally: Toward a reconfiguration of bioethical principles. J Med Philos 2001;26:365‑86.
Wear S. Informed Consent: Patient Autonomy and Physician Beneficence within Clinical Medicine. Dordrecht: Kluwer Academic Publishers; 2012. p. 98-127.
Pollak KI, Alexander SC, Tulsky JA, Lyna P, Coffman CJ, Dolor RJ, et al. Physician empathy and listening: Associations with patient satisfaction and autonomy. J Am Board Fam Med 2011;24:665‑72.
Adams RJ, Smith BJ, Ruffin RE. Patient preferences for autonomy in decision making in asthma management. Thorax 2001;56:126‑32.
Reach G. Patient autonomy in chronic care: Solving a paradox. Patient Prefer Adherence 2013;8:15‑24.
Köpke S, Kasper J, Mühlhauser I, Nübling M, Heesen C. Patient education program to enhance decision autonomy in multiple sclerosis relapse management: A randomized‑controlled trial. Mult Scler 2009;15:96‑108.
Büken NO, Büken E. Emerging health sector problems affecting patient rights in Turkey. Nurs Ethics 2004;11:610‑24.
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