Exploring the Needs of Family Caregivers of Children with Attention Deficit Hyperactivity Disorder: A Qualitative Study

Saeid Pahlavanzadeh, Sharifeh Mousavi, Jahangir Maghsoudi

Abstract


Background: Attention deficit hyperactivity disorder (ADHD) is one of the most common chronic childhood disorders that lead to dysfunction and disability in childhood and subsequently be careful. This study aimed to understand the needs of the children’s caregivers in Iran.

Materials and Methods: This qualitative research was conducted in 2016. Using purposive sampling, 27 participants from 20 families of children with ADHD were interviewed. Unstructured interviews were conducted within 6 months in Isfahan. Data gathering continued until no new data were accessed. Data were analyzed using qualitative content analysis.

Results: The results of this research are shown in three main categories: (1) The caregiver’s need for having sufficient information about the disorder, its cause and treatments (pharmacological and nonpharmacological); (2) the need to have enough knowledge about communication problems while caring for a sick child; and (3) the need to improve the performance of care. They were classified under the relevant concept.

Conclusions: Caregivers of children with ADHD have different needs and problems and assessing them would decrease the child’s problems and consequently, the family’s problems. It would also increase the sense of control and authority over the child’s condition in the caregivers. Since this disorder is chronic and permanent, ignoring the needs of caregivers not only would cut the process of the child’s treatment but would also intensify the family’s and child’s problems. So it is recommended to conduct further studies about each of the resulted concepts in this study and the obstacles for reaching them.


Keywords


Attention deficit hyperactivity disorder, caregivers, need

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References


Ghanizadeh A. Educating and counseling of parents of children with attention‑deficit hyperactivity disorder. Patient Educ Couns. 2007;68:23‑8.

Visser SN, Lesense CA. Mental health in the United States: Prevalence of diagnosis and medication treatment for attention deficit/hyperactivity disorder – United States, 2013. MMWR 2005;54:842‑7.

Powell D, Son S, File N, San Juan R. Parent–school relationships and children’s academic and social outcomes in public school pre‑kindergarten. J Sch Psychol 2010;48:269‑92.

savundranayagam MY, Montgomery RJ, Kosloski K, Little TD. Impact of a psychoeducational program on three type of caregiver burden among spouses. Int J Geriatr Psychiatry 2011;26:388‑96.

Wood JM. Examining stress among parents of children with ADHD. Ph.D. Dissertation. New York University, College of Psychology 2007:50‑8.

Wiersma R, Vander J, Antorop I, Roeyers H. State regulation in adult ADHD: An event‑related potential study. J Clin Exp Neuropsychol 2006;28:1113‑26.

Group MTAC. National institute of mental health multimodal treatment study of ADHD follow‑up: Changes in effectiveness and growth after the end of treatment. Pediatrics 2014;113:762‑9.

Lara C, Fayyad J, Graaf R, Kessler RC, Aguilar‑Gaxiola S, Angermeyer M, et al. Childhood predictors of adult attention‑deficit/hyperactivity disorder: Results from the World Health Organization World, Mental Health Survey Initiative. Biol Psychiatry 2009;659:46‑54.

DosReis S, Mychailyszyn MP, Evans‑Lacko SE, Beltran A, Riley AW, Myers MA. The meaning of attention‑deficit/ hyperactivity disorder medication and parents’ initiation and continuity of treatment for their child. J Child Adolesc Psychopharmacol 2009;19:377‑83.

Hack S, Chow B. Pediatric psychotropic medication compliance: A literature review and research‑based suggestions for improving treatment compliance. J Child Adolesc Psychopharmacol 2011;11:59‑67.

Lazaratou H, Anagnostopoulos DC, Alevizos EV, Haviara F Ploumpidis DN. Parental attitudes and opinions on the use of psychotropic medication in mental disorders of childhood. Ann Gen Psychiatry 2007;6:32.

Less DG, Ronan KR. Parent management training for solo mothers of children diagnosed with attention deficit hyperactivity disorder. An effectiveness and multiple baseline evaluation. Massey University Journal of Attention Disorder 2007; 51: 25‑32.

Barkley RA. Taking charge of ADHD: The complete authoritative guide for parents. New York: Guilford. Call Guilford Publications; 2006.

Hariri M, Jazayery A, Jalali M, Rahimi A, Abdohahian E. Effect of omega‑3 supplementation on hyperactivity, oxidative stress in children with attention‑deficit hyperactivity disorder. Malays J Nutr 2012;18:329‑35.

Shaporabadi S, Pourmohamadrezayetajrishi M, Mohamadkhani P, Farzi M. Effectiveness of positive parenting program on the relationship between mother‑child group in children with ADHD.J Clin Psychol 2012;4:63‑73.

Prinz RJ, Sanders MR. Adopting a population‑level approach to parenting and family support interventions. Clin Psychol Rev 2007;27:739‑49.

Davood K. The effect of behavioral parent training on improving the mental health of mothers with attention deficit hyperactivity disorder children and decreasing their children’s externalizing behavior. J Behav Sci 2014;8:279.

Shure S, Gaue F. Parental and family factors for attention‑deficit/ hyperactivity disorder in Taiwanese children. Aust N Z J Psychiatry 2007;41:688‑96.

Gustafsson P, Thernlund G, Besjakov J, Karrlsson MK, Ericsson I, Svedin CG, et al. ADHD symptoms in primary school children. Acta Paediatr 2008;97:233‑8.

DosReis S, Mychailyszyn MP, Evans‑Lacko SE, Beltran A, Riley AW, Myers MA. The meaning of attention‑deficit/ hyperactivity disorder medication and parents’ initiation and continuity of treatment for their child. J Child Adolesc Psychopharmacol 2009;19:377‑83.

Avadiance H, Editor. Diagnosis and statistics manual of mental disorders of American psychiatric association. Nikkhoo MR, Translator. Tehran: Sokhan Publications; 2005. [In Persian].


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