The Effect an Stress Assessment Based Family Coping Model on Caring Behavior of School Age Children with Autism

Hasyim As’ari, Suriana Suriana, Hilmi Yumni

Abstract


Background: Families who assume the limitations and negative impacts of having an autistic child as a major stressor tend to have a severe stress level, which results in maladaptive family coping and low caring behavior, so failure of autistic children occurs. This study aimed to analyze the effect of family coping models based on stress assessment to caring behavior of school‑aged autistic children.

Materials and Methods: Quasi‑experimental research was conducted on parents of 7–12 years old autistic children in center autism Surabaya, Indonesia. A large sample was used and the rule of thumb was used in sem, 9 indicators × 12 observed variables = 108. Parents were classified into a control group of 54 people without treatment and a control group of 54 people with treatment, who were given an application of randomly determined coping model. Data were collected from May to July 2022 using a questionnaire. Two‑way test of variance using Wilcoxon signed ranks was used, and the difference test between groups uses Mann–Whitney U.

Results: The difference test between in the controlled group shows any significant differences in family coping (z = 0.13) and ability the care for school-age autistic children (z = 0.08). The difference test between samples in the treatment group shows that there are significant differences in family coping (z = 5.04) and ability to care for school-age children autistic (z = 5.08). The difference test between the control and treatment groups shows that there are significant differences in family coping (z = 5.75) and the ability to care for school-age children autistic (z = 7.00).

Conclusions: There is a significant difference on family coping and caring behavior between the control and treatment groups, which is going to be good. It was shown that creating an adaptive family coping was necessary.

 


Keywords


Autistic, behavior caring child, coping model, stress assessment

Full Text:

PDF

References


Robertson AE, Stanfield AC, Watt J, Barry F, Day M, Cormack M, et al. The experience and impact of anxiety in autistic adults: A thematic analysis. Res Autism Spectr Disord 2018;46:8 18.

Enea V, Rusu DM. Raising a child with autism spectrum disorder: A systematic review of the literature investigating parenting stress. J Ment Health Res Intellect Disabil 2020;13:283 321.

Central Bureau of Statistics of Indonesia. Early Childhood Profile 2020. Retrieved from: https://www.bps.go.id/id/publica tion/2020/12/16/61b15a0ae2c3f125 fd89559a/profil-anak-usia-dini-2020.html. [Last accessed on 2023 Aug 27].

Ministry of Education and Culture. Center for Special School Statistics. 1st ed. Jakarta: Pusdatin Ministry of Education and Culture. Retrieved from: https://repositori. kemdikbud.go.id/22120/1/isi_3E73984D-07CD-40C7-9E81-3809CBC4081F_.pdf. [Last accessed on 2023 Aug 06].

Judith AC, Keluskar J, Gorecki A. Parenting behavior and the development of children with autism spectrum disorder. Comprehensive psychiatry 2019;90: 21-9.

Wang H, Hu X, Han ZR. Parental stress, involvement, and family quality of life in mothers and fathers of children with autism spectrum disorder in mainland China: A dyadic analysis. Res Dev Disabil 2020;107:103791.

Abdullahi I, Wong K, Mutch R, Glasson EJ, de Klerk N, Cherian S, et al. Risk of developmental disorders in children of immigrant mothers: a population-based data linkage evaluation. The Journal of pediatrics 2019;204:275-84.

Sim A, Cordier R, Vaz S, Falkmer T. “We are in this together”: Experiences of relationship satisfaction in couples raising a child with autism spectrum disorder. Res Autism Spectr Disord 2019;58:39 51.

Pavlopoulou G, Dimitriou D. ‘I don’t live with autism; I live with my sister’. Sisters’ accounts on growing up with their preverbal autistic siblings. Res Dev Disabil 2019;88:1 15.

Folkman S. Stress: Appraisal and coping. Encyclopedia of Behavioral Medicine. Cham: Springer International Publishing; 2020. p. 2177 9.

Bai D, Marrus N, Yip BHK, Reichenberg A, Constantino JN, Sandin S. Inherited risk for autism through maternal and paternal lineage. Biol Psychiatry 2020;88:480 7.

Hyman SL, Levy SE, Myers SM; Council on Children with Disabilities, Section on Developmental and Behavioral Pediatrics. Identification, evaluation, and management of children with autism spectrum disorder. Pediatrics 2020;145:e20193447.

Hayes SC, Ciarrochi J, Hofmann SG, Chin F, Sahdra B. Evolving an idionomic approach to processes of change: Towards a unified personalized science of human improvement. Behav Res Ther 2022;156:104155.

Asari H, Ana S, Yumni H. Caring for autistic children based on the development of a family stress coping model. Open Access Maced J Med Sci 2023;11:12 5.

Mitchell PJ. Experimental Design and Statistical Analysis for Pharmacology and the Biomedical Sciences. Wile-Blackwell; 2022 p. 141.

Madarevic M, van Esch L, Lambrechts G, Ceulemans E, Van Leeuwen K, Noens I. Parenting behaviours among mothers of pre schoolers on the autism spectrum: Associations with parenting stress and children’s externalising behaviour problems. Res Autism Spectr Disord 2022;90:101901.

Bozkurt G, Uysal G, Düzkaya DS. Examination of care burden and stress coping styles of parents of children with autism spectrum disorder. J Pediatr Nurs 2019;47:142 7.

Gruhn MA, Compas BE. Effects of maltreatment on coping and emotion regulation in childhood and adolescence: A meta analytic review. Child Abuse Negl 2020;103:104446.

Raff NS, Mire SS, Frankel L, McQuillin SD, Loveland K, Daire A, et al. Understanding perceptions underlying the self reported stress among parents of adolescents with autism spectrum disorder: Considerations for supporting families. Res Autism Spectr Disord 2021;84:101770.

Daly G, Jackson J, Lynch H. Family life and autistic children with sensory processing differences: A qualitative evidence synthesis of occupational participation. Front Psychol 2022;13:940478.

Yuri C, Lee S. Coping self-efficacy and parenting stress in mothers of children with congenital heart disease. Heart & Lung 2021;50.2:352-6.


Refbacks

  • There are currently no refbacks.