The Effect of FRIENDS Educational Program on Resilience and Health related Quality of Life in Adolescents with Hemophilia
Abstract
Background: Improving resilience and health‑related quality of life (HRQOL) is one way to adapt to psychological problems in adolescents with hemophilia. One of the educational programs that can probably be effective in improving these factors is the FRIENDS educational program. This study was conducted with the aim of determining the effect of “FRIENDS” educational program on resilience and quality of life in adolescents with hemophilia.
Materials and Methods: This clinical trial was conducted on 60 adolescents with hemophilia selected using a convenience sampling method who visited the Comprehensive Hemophilia Center of Ayatollah Dastgheib Hospital, affiliated with Shiraz University of Medical Sciences, Iran, from August to October 2022; they were divided into two groups of intervention and control based on block random allocation. The data were completed before and immediately after the intervention. The interventions were carried out in 10 weekly 1‑hour sessions. The collected data were analyzed using Chi‑square, independent t‑test, and paired t‑test.
Results: After the intervention, there was a significant difference in the total mean (SD) score of resilience between the intervention group [3.32 (0.14)] and the control group [2.72 (0.14)] (t58 = 31.87; p < 0.01). Furthermore, after the intervention, there was a statistically significant difference (t58 = 20.54; p < 0.01) in the mean (SD) score of HRQOL between the intervention group [3.66 (0.20)] and the control group [2.68 (0.15)].
Conclusions: FRIENDS educational program has positive effects on the resilience and HRQOL of adolescents with hemophilia.
Keywords
References
Mannucci PM. Hemophilia therapy: The future has begun. Haematologica 2020;105:545 53.
Stonebraker JS, Bolton Maggs PHB, Brooker M, Evatt B, Iorio A, Makris M, et al. The world federation of hemophilia annual global survey 1999 2018. Haemophilia 2020;26:591 600.
Speedie L, Middleton A. Wong’s Nursing Care of Infants and Children Australia and New Zealand Edition – For Professionals. 1st ed. Amsterdam: Elsevier; 2021.
Αzab AR, Elnaggar RK, Diab RH, Moawd SA. Therapeutic value of kinesio taping in reducing lower back pain and improving back muscle endurance in adolescents with hemophilia. J Musculoskelet Neuronal Interact 2020;20:256 64.
Forutannasab R, Karimi Z, Zoladl M, Afrasiabifar A. The effect of happiness educational program of Fordyce on the sense of coherence and psychological well being of adolescents with a parent with cancer: A randomized clinical trial. Int J Community Based Nurs Midwifery 2024;12:98 108.
MacConville R, Rae T. Building Happiness, Resilience and Motivation in Adolescents: A Positive Psychology Curriculum for Well Being. 1st ed. London: Jessica Kingsley Publishers; 2012.
Upton J, Constenla Villoslada S, Barrett CB. Caveat utilitor: A comparative assessment of resilience measurement approaches. J Dev Econ 2022;157:102873.
Joyce S, Shand F, Lal TJ, Mott B, Bryant RA, Harvey SB. Resilience@work mindfulness program: Results from a cluster randomized controlled trial with first responders. J Med Internet Res 2019;21:e12894.
Oleś M. Resilience and quality of life in chronically ill youth. Health Psychol Rep 2015;3:220 36.
Carvalhosa AM, Henrard S, Lambert C, Hermans C. Physical and mental quality of life in adult patients with haemophilia in Belgium: The impact of financial issues. Haemophilia 2014;20:479 85.
Rambod M, Sharif F, Molazem Z, Khair K, von Mackensen S. Health related quality of life and psychological aspects of adults with hemophilia in Iran. Clin Appl Thromb Hemost 2018;24:1073 81.
Kassianos AP. Handbook of Quality of Life in Cancer. Springer International Publishing; 2022.
Huang IC, Lee JL, Ketheeswaran P, Jones CM, Revicki DA, Wu AW. Does personality affect health related quality of life? A systematic review. PLoS One 2017;12:e0173806.
Palareti L, Melotti G, Cassis F, Nevitt SJ, Iorio A. Psychological interventions for people with hemophilia. Cochrane Database Syst Rev 2020;3:CD010215.
Alizadeh Z, Sadeghi J, Janbabaei A, Sahebi SA. The effectiveness of friends training program on executive activity and self control of children with attention deficit/hyperactivity disorder. J Psychol Dyn Mod Disord 2023;2:21 9.
Rinaldin Garcia LM, de Salvo Toni CG, Batista AP, Zeggio L. Evaluation of the effectiveness of the fun FRIENDS program. Trends Psychol 2019;27:925 41.
Beygi N, Vadaei S, Sarkoohi Z, Rashidan M, Meresht FS, Hekmatipour N. The effect of training based on friends model on the social skills of school age children. J Emerg Health Care 2022;11:101 9.
Fisak B, Griffin K, Nelson C, Gallegos Guajardo J, Davila de Gárate SM. The effectiveness of the FRIENDS programs for children and adolescents: A meta analytic review. Ment Health Prev 2023;30:200271.
Arkian A, Jadidi M, Mihandost Z. Comparison of effectiveness of FRIENDS program, solution focused brief therapy, and aerobic exercise on students’ psychological well being. Int J Sch Health 2021;8:81 9.
Närvänen E. Effectiveness of the FRIENDS programme in treating children’s internalising symptoms in Finnish outpatient clinics. Turku. Helsinki. Finland: University of Helsinki, Faculty of Medicine; 2020.
Ungar M, Liebenberg L. Cross cultural consultation leading to the development of a valid measure of youth resilience: The international resilience project. Stud Psychol 2009;51:259 68.
Kazerouni Zand B, Shamloo ZS, Mirzaiyan B. The study of Psychometric features for child and youth resilience measure (CYRM 28) in Iranian society: Validity and reliability. J Health Breeze 2013;2:15 21.
Ravens Sieberer U, Auquier P, Erhart M, Gosch A, Rajmil L, Bruil J, et al. The KIDSCREEN 27 quality of life measure for children and adolescents: Psychometric results from a cross cultural survey in 13 European countries. Qual Life Res 2007;16:1347 56.
Nik Azin A, Naeinian M, Shairi MR. Validity and reliability of health related quality of life questionnaire “KIDSCREEN 27” in a sample of Iranian students. Iran J Psychiatry Clin Psychol 2013;18:310 21.
Ghorbanpour M, Arefi F, Haghparast A, Asadinejad H, Akhondzadeh GB. The effect of “Friends” program training on the loneliness of 8 18 years old children with thalassemia major in Golestan province of Iran. Indian J Forensic Med Toxicol 2021;15:3567 72.
Andisheh H, Rasouli SY, Ramezani K. The effectiveness of psychological empowerment training and schema therapy on resilience and cognitive fusion in adolescent girls exposed to domestic violence. Women’s Health Bull 2024;11:262 71.
Setoodeh G, Karami A, Edraki M, Nick N. Investigating the effect of psychological empowerment on using coping strategies, stress, anxiety and depression in adolescents with haemophilia: A randomized controlled trial. Int J Adolesc Youth 2023;28:2270036.
Cheng P, Casement MD, Kalmbach DA, Castelan AC, Drake CL. Digital cognitive behavioral therapy for insomnia promotes later health resilience during the coronavirus disease 19 (COVID 19) pandemic. Sleep 2021;44:zsaa258.
Suranata K, Rangka IB, Jiwa Permana AA. The comparative effect of internet based cognitive behavioral counseling versus face to face cognitive behavioral counseling in terms of student’s resilience. Cogent Psychol 2020;7:1751022.
Yi Frazier JP, Yaptangco M, Semana S, Buscaino E, Thompson V, Cochrane K, et al. The association of personal resilience with stress, coping, and diabetes outcomes in adolescents with type 1 diabetes: Variable and person focused approaches. J Health Psychol 2013;20:1196 206.
Kozina A. Can FRIENDS for Life social emotional learning programme be used for preventing anxiety and aggression in a school environment: 6 months, 1 year and 1 and a half year follow up. Eur J Dev Psychol 2021;18:214 29.
Wu XY, Han LH, Zhang JH, Luo S, Hu JW, Sun K. The influence of physical activity, sedentary behavior on health related quality of life among the general population of children and adolescents: A systematic review. PLoS One 2017;12:e0187668.
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